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John Holzmann
04-09-2010, 09:52 PM
Several weeks ago, I read the "Last Word" in my favorite news magazine, The Week (http://johnscorner.blogspot.com/2010/04/free-magazine-offer.html) (link goes to a little article I wrote about why I enjoy the magazine . . . and a free trial offer). The article was titled Assisting in my parents' suicides (http://www.theweek.com/article/index/106897/Assisting_in_my_parents_suicides), and was adapted from the book The Last Goodnights (http://www.amazon.com/gp/product/158243557X?ie=UTF8&tag=johnscornblog-20&linkCode=as2&camp=1789&creative=390957&creativeASIN=158243557X) by John West. [Note: At the time of this writing, I can't find the article in its original location. But it is still available via Google cache (http://webcache.googleusercontent.com/search?q=cache:4vEukGMC_dsJ:mobile.theweek.com/article/index/106897/Assisting_in_my_parents_suicides).]

At first, it really bothered me. The author told how his father, "a world-renowned psychiatrist, age 74," and dying from a newly-discovered but aggressive cancer, asked him to "step into his bedroom for a private chat."I sat in the big leather chair by the bookshelves, prepared to wait. Whenever Jolly talked to me about something important, he approached it in a roundabout way.

But not this time. Straight away he said, “John, I need your help.”

This startled me: He was asking for help. Jolly never asked for help. His voice was measured and smooth; he sat squarely on the edge of his bed, leaning forward with hands clasped; he looked straight at me.

“I’m dying,” he said. “That’s no secret—everyone knows it. I don’t have more than a few months, at most. But I do have something that is very important to me. I have options about how and when my death will occur.” He paused to let this sink in. “At some point,” he continued, “not too long from now, I will decide that enough is enough. By that time I will be full of all sorts of drugs, particularly the morphine that I’m already taking for pain. A little extra of that should do the trick, without anyone having to know and get upset. . . .

“My body is full of cancer. If I knock off a little ahead of schedule, nobody’s going to know the difference, and I’ll have saved myself a h*ll of a lot of pain.”

Then he looked straight at me. “But I’ll need you on board, to help me."
I read that and thought, How unfair! Why did he have to say anything to his son? If he wanted to kill himself, why didn't he just do it quietly? . . . Now he was placing this horrible burden on his son.

Despite my frustration, I read the entire article and, over the next few days, found myself thinking new thoughts.

Some of the pieces of data that floated into my mind:


A significant--significant--fraction of people's lifetime healthcare costs accrue in the last few months of their lives.



According to a National Institutes of Health study (http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464043/), "From 1992 to 1996, mean annual medical expenditures (1996 dollars) for persons aged 65 and older were $37,581 during the last year of life versus $7,365 for non-terminal years. Mean total last-year-of-life expenditures did not differ greatly by age at death. . . . Last-year-of-life expenses constituted 22 percent of all medical, 26 percent of Medicare, 18 percent of all non-Medicare expenditures, and 25 percent of Medicaid expenditures."



According to the Canadian Institute of Actuaries (http://findarticles.com/p/articles/mi_m0LVZ/is_8_17/ai_84895863/), "30 to 50 per cent of total lifetime health care expenditures occur in the last six months of life."



I could go on, but I'm sure you get the picture.



We have to be careful when looking at such statistics. I think there can be no doubt: Some of the reason costs are so high at those points in people's lives is because many people die of traumas or injuries or illnesses in which there is good hope that they might survive . . . "if only." But the "if only's" don't always come.



If only intervention could have begun five minutes earlier, or an hour.



If only the medical staff had noticed this one additional complicating factor.



If only . . .

So it's not as if the medical staff or the patients' families expected them to die. In fact, they did not; or, at least, they had good reasons for hope that the patients would survive.HOWEVER, I thought . . . What if I were in the position of John West's dad? I mean, the prognosis was truly hopeless. Yes, the doctors could imagine I might linger for another few months if enough resources were directed my way. But . . .


No one sees me "coming back" to real health.



My life, such as it would be, will consist primarily of lying in bed, half-conscious/semi-comatose, possibly in great pain.

"What if I didn't have major medical insurance?" I asked myself. "What if I didn't have a million-dollar health policy behind me (but I did have several hundred thousand dollars, say, that I could spend on my healthcare if I wanted). Would I really want my family to invest all that money in my care to keep me alive for a few extra weeks--or even months?

And I thought, "No. I wouldn't. Why would I? Why should I? Wouldn't I want the living to enjoy the benefits of that money rather than me simply 'hanging on' for a few extra days or weeks or even months?"


I don't think I would want someone to take active measures to end my life. But it seems to me not unreasonable at some point to say, "Y'know. You really don't have to take any extraordinary measures to 'keep me alive.' . . ."

*****
That's what I was thinking.

The biggest problem with this kind of thinking, it seems to me, has to do with clarifying your thoughts and then expressing them in a precise and concise manner, so someone can interpret your wishes with confidence.

How can you express yourself as being willing to "hold your life loosely," yet not so crazy "loosely" that you wind up being "offed" when you could have been patched up and given several more years of productive time on Earth . . . ?

Any thoughts on this matter? Any input?

TDHolz
04-10-2010, 11:17 PM
I've never seen the legal forms involved, but are you not referring to DNR (do not resuscitate) here? Part of that, as I understand it, has to do with "extreme measures"; when and which of them shall(not) be used.

John Holzmann
04-11-2010, 02:05 PM
I've never seen the legal forms involved, but are you not referring to DNR (do not resuscitate) here? Part of that, as I understand it, has to do with "extreme measures"; when and which of them shall(not) be used.
First of all, I'd like to encourage you to take a look at a relatively generic living will. Here's a source for free, U.S. state-specific living will/advanced care directives (http://www.doyourownwill.com/lwindex.asp).

Clearly, DNR is one of the options within a living will/advance health care directive. But it is only one option. . . .

PS: Thanks for being the first "outside" person to post on this forum! :)

MrPete
04-11-2010, 08:36 PM
John wrote:
What if I were in the position of John West's dad? I mean, the prognosis was truly hopeless. Yes, the doctors could imagine I might linger for another few months if enough resources were directed my way. But . . .


No one sees me "coming back" to real health.



My life, such as it would be, will consist primarily of lying in bed, half-conscious/semi-comatose, possibly in great pain.

The key element here is bolded above. It's based on a premise that assumes human knowledge and understanding can determine hope. Note that there is not a single element of spirituality suggested or stated anywhere in the entire scenario.

Here's where this premise leads: a prognosis-prediction system is already in its third generation of testing in ER's across the US (sadly i can't think of the name right now). Fifteen factors are measured. Right now, they're just monitoring.... the idea is to have an expert system that "knows" the probability of "good quality of life" at the end... based on the factors measured on intake. So then they can decide whether to treat you.

Here's where else this premise leads: google "slow code" ... where doctors decide to override the family's wishes, and simply go through the motions of medical care, without actually trying to save a life. In fact, in JAMA (Journal of the AMA) they've even had discussions of how best to fool the loved ones in the room, e.g. by injecting medication into the matress instead of the patient.

And here's where else this premise leads: people are led to assume that The Doctors Know whether their situation is hopeless... and they are given no encouragement to have hope. No joy. No peace.

Search a bit to find the proposed government (VA?) booklet to be given to seniors "out there" (I have a copy somewhere)... the Bush Administration banned the booklet because it doesn't even suggest a senior could have hope. The only options discussed are either hanging on in pain... or allowing them to terminate care. No suggestion that one might actually recover. It's all about the money, you see.

Thus... in this brave new world...


I would not have been offered care at streetside in South Africa... I'm an obvious "low probability of recovery" patient...
Leslie's Dad, who had a horrifying "terminal" case of cancer, would not have been treated... likely not have lived to see his granddaughter get married... not have experienced the miraculous healing (AFTER the initial treatments)... not have lived four more years (to date)...and still going strong.
Our young friend Gretchen in California, an example to many... endured horrific pain for sixteen (!) years, was completely bedridden. Then suddenly was able to function again. She got her life back and is enjoying a full life of joy and peace.

I could go on and on.

The fallacy: who are WE to determine that "the prognosis is truly hopeless"?

I have no problem with loved ones terminating extensive measures after an agreed-upon period. I have no problem with loving hospice care (addressing pain without attempting to treat the disease.) I have a big problem with assisted (purposeful) suicide. I have a big problem with doctors deciding not to treat based on their idea of "future quality of life."

In today's world, to accomplish this one must be very careful:


Always designate someone with medical power of attorney
Design a living will such that the doctors must always obey your loved one, and your loved one has authority to make decisions
If you like, create a DNR but only give it to your loved one.
NEVER turn over a DNR to a care provider, unless and until it has been decided that the DNR should be acted on!!! NEVER.

I can give horrifying examples of DNR's gone crazy. Such as a case (a friend of mine) where the care providers refused treatment, even though the spouse with medical power of attorney insisted on it. And they refused to return the DNR to the spouse. She had to go to court to regain control over her own husband's life.

Here in Colorado there are medical offices (we use one at SkyRidge!) where by policy the do NOT honor DNR's, and before beginning treatment you must agree in writing. I could not understand why they would do this, until they explained the above. They told us "Unfortunately, today many doctors assume a DNR gives them the authority to decide whether to treat, NOT based on "extraordinary measures" but based on their opinion of your future quality of life. We disagree, and we want to make that clear to you. In this office, we assume you are here to be treated. If you don't want to be treated, you or a loved one can refuse treatment, but we will not make that decision for you."

I for one would never condone purposeful suicide. That is for God to decide.

Whew. Better quit before this becomes TWO tomes :)

PS: Have you ever read The Heavenly Man? Included in there is the verified story of an underground church leader in China who experienced a complete impossibility... 72 days fasting without food or water. Yes, ridiculous. But hey, I'm alive and that's ridiculous too :)

MrPete
04-11-2010, 08:40 PM
The link provided suggests that the referenced documents are Living Wills.

At least for Colorado, they do not provide a Living Will there. It is an Advanced Care Directive, a new name for a DNR. This document is one I would NEVER give to a doctor in advance. Never.

There are also living wills. Not the same.

MrPete
04-11-2010, 08:43 PM
This forum software is painful...

- hard to do a full reply to a specific message. It's either regular reply to the last comment, or a Quick reply to any comment.

Pretty confusing...

I did figure it out: instead of clicking "Reply To Thread" at the bottom, first begin a quick reply, then click "Go Advanced." Of course... :)